Timeline


Apr-11 Homestudy began
Jul-11 Signed with Holt
6/28/11 Found Jospehine, but another family is
currently reviewing
7/13/11 Received information for Josephine
to review
07/20/11 Asked for additional information about
Josephine's development
08/20/11 Filed I800A
08/23/11 Received additional information from her
orphanage and asked to hold her for me
08/24/11 Josephine went off Great Walls list to Holt
08/26/11 Sent LOI (Letter of Intent)
9/2/11 LOI uploaded in china
9/7/11 Got fingerprinted
9/29/11 800A
10/14/11 DTC (Dossier to China)
10/18/2011 LID (Logged in Date)
12/14/2011 LOA!
02/03/2012 Article 5 Pickup
02/16/2012Travel Approval
03/13/2012 Travel to CHINA!!!!!
03/29/2012 Homecoming


Thursday, June 21, 2012

Aspirin Decisions

I was wrong in my previous post. Dr Parker recommends aspirin treatment if the Hemotologist recommends it (which he did) because he is the specialist. However both said there is not enough data and research on childhood and inutero strokes so there is no clear protocol for the use of aspirin prevention . Both said it is ultimately up to me to weigh the risks and benefits and decide what I'm comfortable with. Which is where I am now...that is researching and trying to understand all the pieces of the puzzle to keep my precious girl safe and healthy.

Since we now know the results of the MRI, I called our Cardiologist with the new information and she explained that given that she had a left MCA infarct, her clot must have travelled through her PFO (which is now closed). However, because she had a clot, and because of the MCA stenosis, she also felt aspirin was warranted. I was comforted to hear that in her 15 years of treating children with heart problems, with the majority on daily aspirin, she has never had a case of Reyes Syndrome. She feels the benefit outweighs the risk.

I left a message for the Hemotologist to ask if he recommended the aspirin because of the stenosis or simply the history of a blood clot. Also at the appointment I did not tell him Josephine had a PFO so I want to see if that makes a difference. I also want to know if an MRA looking more closely at the arteries and veins could be helpful.

And my last plan before making this decision is to talk to Dr. Denney tomorrow. According to my google research there is a test that looks at the liver enzymes that can predict if a child may be predisposed to Reyes Syndrome. I want to ask him if we should test for that. I also want to ask about the chicken pox vaccination before starting aspirin to further minimize the chance of Reyes Syndrome. We are slowly redoing Josephine's immunizations because she did not show antibioties to certain diseases the China records showed she had received immunizations for...so I'm going to ask if we should do the chicken pox one now.

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