Back to school night

Sent from my iPhoneMadalyn is a little sad about repeating first grade. But since she is doing much better than she has for the last 24 months,I think this repeat will be very constructive for her.

She's asking questions, and has more meaningful conversations every day. Several times she's asked "do you think I'll make it to second grade this time?". She says it with such innocent sincerity, it hurts my heart... But just knowing she is thinking clearly enough to pose the question makes me know she's going to have a better year.

Of course I tell her she will go to second grade next year! The IEP means I can make that promise! But I do believe she will make it on her own!

Her current seizure medicine appears to be working as good as her first seizure med did. That was THE medicine she started in K-5 that made her dry every night, and gave us 3 glorious weeks in China with no meltdowns, or hyperactivity. Life was great until she got the Lamictal rash and had to stop it. Since then she was wet every night with periods of severe meltdowns, hyperactivity, and cognitive decline.

But since starting Oxtellar in May, and then tweaking the dose last month, she has been dry 14 nights, which is attributed to the medicine controlling things at night (we assume spiking or seizures cause night wetting because it always responds to medication increases/changes). And we finally achieved the same result we did 2 years ago, which is since she is dry at night, she is also doing well behaviorally and cognitively.

I know first hand now why folks in the epilepsy world say "there's no such thing as the perfect seizure medicine..only the best one for the person for that particular time period"...so I'll just be thankful for today and try not to worry about next week, next year, or her teens! Ha