So far today she has not seen any spiking on her EEG. She does see intermittent slowing, but that is likely from her known stroke. When asked if intermittent means it could be from a seizure, she said sometimes even from a known injury, it can still be intermittent.
I asked her the liklihood that spiking or seizures could be deep in the frontal lobe, and therefore not detected on the EEG. She said "that's always the concern with frontal lobe seizures...that they can be hidden". I asked her if the location of Madalyn's injuries made that likely, or not. Since she hasn't looked at her MRI sinc 2007, I showed her a copy of the report on my phone and she was able to tell it was in the _______ section (going to get her to tell me again tomorrow) and therefore not the most likely to be hidden, but doesn't rule it out.
I asked her if we should still go to Cleveland Clinic. I told her I was worried that if we can't pick anything that it would be a wasted trip. She said definitely go. She said that's our ticket to being seen if we get into a crtitical situation. She referenced how fast this issue came up, and said it would be great to already be established as a patient at the Cleveland Clinic if things stay the same or worsen.
I asked her if we could decrease her current medications to see how she does. Since she is having episodes, something isn't working. Plus, the Depakote is doing what Dr. Parker calls the "depakote perm", meaning her hair is frizzy and fried looking. So, depending on how her EEG looks, we may consider weaning off of at least one medicine. She said we just have to make only once change at a time and see what happens.
I asked her the likelihood that the EEG given in the ER and on the floor last Saturday would have showed "slowing" indicating a recent seizure. She said, not likely, therefore the fact that it didn't show anything isn't very significant.
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