Ronald McDonald house just called and they have a spot for us! Yeah! Our current hotel is expensive and not-so-great! But all else is good here.
She had an MRI and PET scan, so thar was two stressful days of no eating and anesthesia...
As of last night we stopped her seizure meds to wait for a seizure. Last night the monitors pressed her seizure alarm button and many nurses came in our room to check on her. I'll find out this morning what they saw and if it was significant. Now that they have collected a few days of data, today's doctor visit should give much more insight.
A volunteer is now coloring with Madalyn, which she loves! The volunteers here are amazing! They have given her a soft hand made blanket and a pillow case. They bring lots of treats every day. It really helps Madalyn keep her mind off all the procedures and long days of staying in bed.
Sent from my iPhone
Sent from my iPhone
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