The nurse gave read me parts from the MRI report on the phone today. I vaguely remember hearing "extensive damage" and I think I was processing that, so maybe I missed the other details. I do remember asking if it was localized, and she said no, it sounds large. So, tomorrow I'll call and ask her to mail me the report....then I'll be ready to ask more questions at our appointment with Dr. Parker in June. I'll continue to remind myself that she is doing great, and an MRI doesn't place limits on these awesome kids.
Madalyn's rash is worse. It has now spread to her feet, hands, and upper thigh. It is still on her back (and extends all the way down), chest, around her knees, and over her right shoulder. The instructions remain the same. Watch closely for any signs of issues in the mouth, eyes, or mucus membranes. Unless it improves, I'll keep her home from school again tomorrow.
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Madalyn's chest |
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Madalyn's back |
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