I'm still working on getting her to bear weight, even if just on a bent elbow. So far, that arm collapses if I place her in any weight bearing exercise. I'm not sure how that skill will emerge...but will keep trying. After that skill emerges, I am hopeful some opening of the fist may occur.
Of course, her therapists will work on these goals as well. However, 1/2 hour per week will not be enough, so lots of home therapy will be needed. Unfortunately, as much as I want to get her into an intense summer program, I have to wait until she has had more time to adjust and bond to us....so, I will hold off until the following summer.
Josephine's sister, Madalyn has been able to gain almost full function in bilateral activities, thanks to early diagnosis and therapy that began at 9 months. And even more importantly, each year since she was 2 she has participated in 4 weeks of 7 hour per day Constraint Induced Movement Therapy. We will never know how much of Josephine's starting point is attributed to lack of therapy at a young age, or just location of her stroke, and her individual brain's way of re-wiring. However, since Josephine has full use of of left side, and will no doubt continue to make gains in her right side, I'm sure she will be able to do all things she wants to in life!
So, as you watch the video, remember this is just her starting point. She will make huge gains and will learn to be motivated by the independence and sense of accomplishment each fine motor skill gain will bring!
Here are the videos that shows Madalyn's starting point...and where she is now.....
http://www.onetruemedia.com/my_shared?z=2c24c943149b444adc0c91&utm_source=otm&utm_medium=text_url
6 comments:
I have been following along with your blog and each time and with each photo..I jsut cry tears of joy for you all. I am so happy for you all and so amazed by you!!! Can't wait to see you all.
Kim Oakes
I have been thinking A LOT about you guys, too! Let's please get together soon. Madalyn would love to play with Dani, and I want my hands on your little Will!
Yeah Josephine!!!! That is awesome! I have been following along with your blog , and I am so happy for you guys. Looking at the pictures and videos I am reminded so much of when Amelia Jane was younger. Keep up all that good therapy and I know she will get amazing results! Tell Madelyn that Amelia Jane says hello and has enjoyed looking at the pictures of her and her new sister : ) Leah Sturgeon
Hey Leah!
Great to hear from you! Are y'all going back to Georgia this year? We are not....and I'm sad I won't be seeing everyone again this year! I sure would love to get the girls together. Tell Amelia Jane we say hello!! I may call you sometime to ask some questions about Amelia Jane's earlier milestones....isn't her affected side right, too?
Cheri,
Yes, she is a rightie, I would love to chat and catch up and answer any questions you might have. We are going back to camp this year. Amelia Jane is going to be disappointed that Madelyn won't be there, but we need to plan a meet up somewhere between FL and MS.
Leah : )
Hooray for Josephine!!!! We have GOT to get together soon...Love that she's already following instructions. AND with her right hand! You go girl! Nancy
Post a Comment