Sent from my iPhone
Saturday, March 30, 2013
Wednesday, March 27, 2013
Tuesday, March 26, 2013
Monday, March 25, 2013
Lost a tooth and short update
She lost her front tooth! It's been hanging all day. She pulled it herself and now she says it feels much better!
We are really struggling with seizures right now. She is also tired and regressing in motor and cognitive skills. I'm waiting to hear the next plan from her doctor!
I'm also sending her records to the Cleveland Clinic for an e-consult. I'm specifically asking if she would be a surgery candidate. She may be no where near that. However, surgery is looked at sooner for her type of seizure and its underlying cause, so it's worth asking.
Sent from my iPhone
Tuesday, March 19, 2013
On this day one year ago!
Sent from my iPhoneCelebrating meeting our precious Qian Ru on this day one year ago!
Happy one year forever family day!
All I want to say is how thankful I am that I have the privilege of knowing what a mother's love feels like to two precious children! Because it really is a feeling like no other.
And also to feel the joy of watching my mom, dad, sister, and best friends love, laugh, and smile with your children. Really, it's the best!
And to celebrate Josephine's forever day, my sister surprised us with Minnie mouse balloons and a cake! She had my mom, dad, and herself all at my house when we got home this afternoon!
Josephine was so excited she screeched at the balloons! Then she just kept talking about the Mickey Mouse plates, napkins, and cake. This time she knew exactly what a cake is for....eating! She climbed right up on the bench an waited for her piece.
What a difference a year makes!
Thank you Nikki, mom and dad for all your love and support! I'm so happy Madalyn and Josephine have you!
Sent from my iPhone
And also to feel the joy of watching my mom, dad, sister, and best friends love, laugh, and smile with your children. Really, it's the best!
And to celebrate Josephine's forever day, my sister surprised us with Minnie mouse balloons and a cake! She had my mom, dad, and herself all at my house when we got home this afternoon!
Josephine was so excited she screeched at the balloons! Then she just kept talking about the Mickey Mouse plates, napkins, and cake. This time she knew exactly what a cake is for....eating! She climbed right up on the bench an waited for her piece.
What a difference a year makes!
Thank you Nikki, mom and dad for all your love and support! I'm so happy Madalyn and Josephine have you!
Sent from my iPhone
Sunday, March 17, 2013
Same conversation when not having an episode
Unfortunately it seems like Madalyn is still having some seizures. After I talk to her neurologist's office, I'll know more..
I captured the second part of an episode last week on camera. Before I got the camera she wasn't responding at all.
Tonight I decided to approach her while she was doing the same activities, and her response was normal. I asked her the same questions as I did in last week's video and as you can see, her response pretty much shows she thinks I've lost my mind:)
Before and after both videos she is normal...
Here are the two videos:
http://www.youtube.com/watch?v=TZpZIME41ZE&feature=youtube_gdata_player
http://www.youtube.com/watch?v=qEA2tKYAiuY
Sent from my iPhone
I captured the second part of an episode last week on camera. Before I got the camera she wasn't responding at all.
Tonight I decided to approach her while she was doing the same activities, and her response was normal. I asked her the same questions as I did in last week's video and as you can see, her response pretty much shows she thinks I've lost my mind:)
Before and after both videos she is normal...
Here are the two videos:
http://www.youtube.com/watch?v=TZpZIME41ZE&feature=youtube_gdata_player
http://www.youtube.com/watch?v=qEA2tKYAiuY
Sent from my iPhone
Saturday, March 16, 2013
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